When It Rains...

We got home from our stay at the hospital late Friday night and everyone crashed. We did notice by the end of the week that Isaiah's eye deviations have improved dramatically. He went form looking almost exclusively to the right to looking around and even looking directly at us. It comes and goes, but knowing that sometimes he is actually SEEING us is amazing compared to when he was first diagnosed. We also had some awesome friends bring us dinner and just hang out on Saturday night after we got back. To be able to spend time laughing and eating with friends was amazingly refreshing after spending most of the week in the hospital. Late Saturday night when I was changing Isaiah's diaper I noticed a bump on his little hiney. It was raised and hard. I mentioned it to Gabriel but thought I'd wait and see how it looked later.

The next afternoon Dr. Wootton (Infectious Disease) called Gabriel to check in. (Have I mentioned how amazing all of Isaiah's doctors are?) Gabriel told her about the bump and she asked us to send pictures. We emailed her and she forwarded them to Dr. Conlon (pediatrician) and they decided I should go ahead and bring Isaiah into the office on Monday to see if it was an infection. Monday morning came and I took Isaiah to see Dr. Chia (other pediatrician in the same practice) and she told me it was a staph infection and prescribed antibiotics. She told me in any child, but especially Isaiah, that if it wasn't better in two days that we needed to let her know and might have to go to the hospital for IV antibiotics. I called the office back Thursday morning to let them know that it didn't look worse, but it definitely didn't look better. She told me to take some more pictures and email them and then since we were going to be in the building the next day for Isaiah's ophthalmology follow up we could stop by then. A few minutes later I left to go pick Morgan up from his play date at the neighbors. When I got back Gabriel told me Dr. Conlon had called and told me to go ahead and take Isaiah to the ER.

Having learned my lesson the first time I brought enough stuff in the event that we would be admitted and staying over night. I met my aunt who was going to take care of Morgan and headed over to the hospital. They took Isaiah's vitals and put us in a room. Then a nurse came in and looked at his spot. The nurse told me she thought we would have to stay the night since he had already been on oral antibiotics and wasn't showing any obvious signs of getting better. Then the ER doctor came in. She saw the spot and was surprised with how small it was. Apparently, the staph they usually see in the ER is pretty gross. Isaiah's toxoplasmosis medications require that he have weekly blood tests to check his white blood cell count so they went ahead and did that while we were at the ER and would use his levels to decide if we were staying the night or not. Because Isaiah had been stuck so much at the hospital the week before the nurse had a hard time finding a spot to use. She poked him once and only a drop came out. So then she went and got this cool light that lit his hand up so she could see the veins in it. If I wasn't so worried about them finding a good spot I would have thought it was pretty cool. The light helped and she only have to poke him one more time. When they were finished one of the nurses found out I hadn't eaten lunch yet and got me juice, a sandwich, and a pudding cup. We have had some great nurses at Memorial Hermann. When the tests came back Isaiah's levels were great so they said we could go home! Yay!

So I headed over to my aunt's to pick Morgan up. When we got home Gabriel noticed Morgan felt pretty warm so we took his temp. He had a fever of 102.5. SIGH. I gave him some ibuprofen, checked for any spots that looked like Isaiah's and put a call in to the pediatrician's office. I didn't want to take any chances over the weekend. The on call doctor told me to check his temp again while he was asleep and then bring him in the next day (Friday).

Friday morning we had an ophthalmology appointment for Isaiah and Morgan. Dr. Kumar wanted to check Morgan's eyes to make sure everything was ok and to check Isaiah's eyes to make sure the toxo medicines were doing their job and healing an active lesion they found while we were in the hospital. Thankfully, Morgan's eyes are perfect and he did great at the office and Isaiah's lesion is already regressing after less than two weeks of medication! Afterwards we popped into the pediatrician's office and learned that Morgan had strep throat!

So things haven't really slowed down here much. Isaiah and Morgan are both on antibiotics and Gabriel and I are trying to catch our breath. Thankfully, we serve a God who never has to catch his breath and who is always there for us. God has definitely blessed me with a peace in knowing that he gave Isaiah to us for a reason and that we just need to lean into Him. Please continue to pray for peace and that we rely on God in all the decisions we make with Isaiah's care.